Since the evolution human race has fought off many deadly diseases and survived. With the help of science and technology we, human have found cures for many deadly diseases. And one of such diseases is Haemophilia. So what is Hemophilia? And how does it affect us? What are the symptoms and solutions for this disorder? Don’t worry? We have given all this information about Haemophilia in this article. This article will help you to write an essay, speech, paragraph on what is haemophilia and World Hemophilia day. So, let’s start.
World Haemophilia Day Information, Speech, Essay and Article in English
What is Hemophilia and World Haemophilia Day?
Haemophilia is a bodily disorder which is mainly inherited genetically and hampers the body’s ability to make blood clots to stop bleeding after an injury. People with haemophilia keep bleeding long after a cut bruise or injury and process and increased risk of bleeding into the joints and the brain.
If a person bleeds into their joint, they can be permanently damaged and in case any blood gets into their brain, it can result in migraines, seizures or decrease in the levels of the consciousness. Haemophilia is not a contagious disease, its present since the birth of an individual, therefore, you cannot pass haemophilia onto someone. Sometimes people develop Hemophilia after they cross the age of 50.
Types of Haemophilia
There are primarily two types of Haemophilia: Haemophilia A and Haemophilia B. Haemophilia A and B are different from each other and each type is caused due to low levels of different clotting factors. Haemophilia A is more common than Haemophilia B. It is caused by lower levels of the clotting factor VIII whereas haemophilia B is caused by lower levels of clotting factor IX. Both the types of haemophilia hamper blood clotting. Bleeding can be internal (more common) or external. The range of haemophilia goes from mild to very severe. A mild case of haemophilia only occurs after having surgery or an injury whereas severe cases of haemophilia include bleeding profusely after a minor cut or sometimes for no apparent reason at all. In severe cases of haemophilia, bleeding can occur up to 2 times a week and may go into the muscles, joints, or even into the brain. Symptoms and consequences of Hemophilia include stiffness, arthritis caused by bleeding into the joints, swelling, pain in the muscles et cetera.
World Haemophilia Day is celebrated on 17th April which is the birthdate of Frank Schnabel, who was the founder of WFH or the World Federation of Haemophilia. World haemophilia day was established for the first time in the year 1989 to spread awareness about the disease. So the first World Haemophilia Day was celebrated on 17 April 1989. Haemophilia affects about one person in five thousand to ten thousand people, in the united states of America.
History and Origin of Haemophilia and World Haemophilia Day 2018
World haemophilia day is celebrated on the 17th of April every year. It is usually celebrated for 5 days in which every possible effort is made to spread awareness about the disease and the related disorders. The world haemophilia day was first celebrated in the year 1989 on 17th of April point this date was selected because it was the birthday of Frank Schnabel, who is the founder of world Federation of haemophilia. Frank founded world Federation of haemophilia in 1963. Its headquarters are situated in Montreal in Canada and currently, 113 countries are the members of world Federation of haemophilia including India, Canada, United Kingdom, United States of America and several countries from Europe.
Haemophilia is a genetic disorder and is not contagious which means it cannot be passed on from one person to another. Currently, about 500,000 people are suffering from haemophilia in the world and therefore the treatments available for the same or not many.
Purpose and Importance of World Haemophilia Day 2018
2018 will be the twenty-eighth year in which world haemophilia day will be celebrated. World Federation of haemophilia is focusing and has always focused on spreading awareness about haemophilia and finding out better ways to treat people with this disease and care for them.
There are a countless number of people in the world who are not aware that they have haemophilia and other bleeding disorders, and therefore go untreated all the lives. According to the statistics given by world Federation of haemophilia about one person in thousand suffers from haemophilia or any other bleeding disorder. Therefore, world haemophilia day is dedicated to spreading awareness about all the bleeding disorders and increasing the availability of treatments and solutions for people suffering from the same.
A very clever slogan is used to spread awareness of the disease- “Close the Gap”. The slogan has a double meaning. It signifies the difference in the treatments available for people with bleeding in different countries all over the world and, it also means closing the ‘gap’, which haemophilic patients’ bodies fail to do. The gap refers to clotting after an injury which stops the bleeding.
World Haemophilia Day 2018 Logo, Posters, Banners
The World Federation of haemophilia is more than happy to provide people with resources if they wish to get involved in spreading awareness about such diseases. They provide resources like posters, platforms, logos, slogans, several activities, pamphlets with information, templates from their official website.
We can also do our part by sharing a simple message talking about Hemophilia and other related diseases with friends and relatives. We can also share posts related to search diseases on our Facebook and Instagram accounts as well as other social media platforms.
Theme for World Haemophilia Day 2018 & Social Media Hashtags
Every year a different theme is used for world Hemophilia day. In 2017 the theme was “Hear their Voices”. Some of the themes over the years were as follows:
- 2017: “Hear Their Voices”
- 2016: “Treatment for All, The Vision of All”.
- 2010: “The Many Faces of Bleeding Disorders – United to Achieve Treatment for All”.
- 2009: “Together, We Care”.
- 2008: “Count Me In”.
- 2007: “Improve Your Life!”.
The theme for this year 2018’s World Hemophilia Day was decided upon collectively to be “Sharing knowledge makes us stronger”
Interesting Fun Facts About Hemophilia and World Haemophilia Day
There are many facts that would come as surprising to you about haemophilia and the World Hemophilia Day. Some of them are mentioned below:
- World Hemophilia Day has not been around for many years. The tradition of staring it is only about 28 years old.
- Hemophilia is often referred to as ‘The Royal Disease’. It gets this name as many people of the several rulers and members of the royal families had this disease including the likes of Queen Victoria.
- Haemophilia affects more men than women since they only have one pair of the X chromosome whereas women have two. The faulty genes that lead to Hemophilia lie within the X chromosome, therefore, the men who have the X chromosome which carries the disease are affected by it whereas in women, the other X chromosome makes up for the shortcomings.
- Even though women are not very likely to suffer from this disease, they are the ones who carry this forward.
- There are primarily two types of Haemophilia: Haemophilia A and Haemophilia B. Haemophilia A and B are different from each other and each type is caused due to low levels of a different clotting factor. Haemophilia A is more common than Haemophilia B. It is caused by lower levels of the clotting factor VIII whereas haemophilia B is caused by lower levels of clotting factor IX.
- Hemophilia has no cure till date and this disease, unfortunately, can’t be prevented.
World Haemophilia Day 2018 Celebration Ideas, Activities and Events
There are several numbers of ways in which we can help people suffering from Hemophilia and other related bleeding disorders. Following are some celebration ideas, activities and events which can be organized in schools, colleges, community centres and offices.
- Everyone can wear red clothes or inculcate a red article of clothing in their attire to show their collective support for people suffering from Hemophilia and related blood disorders.
- Everyone can gather around and discuss the importance of spreading awareness about this disease and the value of World Hemophilia Day.
- People can gather in huge numbers and donate funds to organisations which help Hemophilia patients in need and also work towards finding better solutions for such diseases.
- A global feast can take place in which people can donate sums for better treatment and caring facilities for people suffering from blood-related diseases, like Hemophilia.
- If a large number of people make a collective effort of giving up the money they buy lunch with to organisations like the world federation of Hemophilia, it could make a significant difference in the lives of those who are affected by this spine-chilling disease.
- People can take to the streets and raise awareness and seek funds for those in need.
- Almost every one of us has a gadget in the 21st century, we can use them wisely and spread awareness by using hashtags like #Hemophilia, #WorldHemophiliaDay, #Closethegap, #HearTheirVoices, #SpreadAwareness
For some people, minor cuts and injuries are not big deal but for people with haemophilia, they can be very cumbersome and can become a matter of life or death. Since not many people all over the world suffer from this disease, treatments and solutions that are currently available are not very effective. People with blood-related diseases like haemophilia require an extreme amount of care. About 75 to 80% of the people suffering from any blood-related disease are not aware of it since the diseases are most of the times inherited and present since birth. Therefore, has become all the more important to raise awareness about it and the world haemophilia day gives us the platform and opportunity to do the same.
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